Friday, 9 June 2017

Debbie King, Canada, June Scleroderma Awareness Month 2017, Raynaud's, Rare Disease, Patient Profiles DAY 9



June Scleroderma Awareness Month 2017 Patient Profiles

Name:           Debbie King

Location:       Vancouver, Canada

Diagnosis:    Systemic Scleroderma

I was diagnosed around 2009/10.

Presenting symptoms were my hands - the fingernails were sort of warped and shrinking if that makes sense?!

My original rheumatologist dismissed my self-made diagnosis of scleroderma with a blunt – ‘don't be ridiculous you do not have scleroderma’. I no longer see him.

I currently take prednisone, hydrochlorquine and I have just started injecting methotrexate once a week.

My biggest challenge by far is the digital ulcers - constantly getting infected, extremely painful, and flat out exhausting.   

My biggest challenge by far is the digital ulcers - constantly getting infected, extremely painful, and flat out exhausting.  I was doing ok until a nasty ulcer on my pinky finger showed up and I have a bone infection.

I had a picc line put in last Tuesday. Today will be day 16 iv therapy. I am not super happy about this, but the hope is to save my finger from being amputated.     

Tips for living for me, anyways are - be a warrior, cry when you have to, but do NOT give in to this disease. I refuse to.    

My 3 wishes for the future are –

-        Find a cure for this debilitating painful disease
-        Educate those that know little about it
-        Just hang in there

Life is good, take time to rest when you need it.

Do not ignore what your body is telling you!      

Big thanks go to Debbie for sharing her scleroderma experience for scleroderma awareness month.  Please include her finger in your thoughts and prayers. Thank You.

To read more about why I chose ‘Patient Profiling and Research’ as the focus of my 2017 campaign, Click here     

Why Research and Patient Profiles? Scleroderma Awareness Month 2017, Raynaud's, Rare Autoimmune Disease, Click here    

2017 INDEX Scleroderma Awareness Campaign Patient Profiles Click here    

INDEX to Scleroderma Awareness 2016 Campaign, Click here 

To read my articles  

Importance of an early diagnosis, Click here 

Taking Part in Clinical Research Trials, Click here

Expert Specialist Centres, Click here 

My Skin is Cured from Scleroderma, Click here 

UK Guidelines for Managing and Treating Scleroderma, Click here

World Scleroderma Day 29th June Click here   

Please donate to help fund medical research at The Scleroderma Unit where 100% of all of your monies will be used for medical research purposes only. Thank You.


June 2017 Total

Living the dream hoping for a cure

#SclerodermaFreeWorld #RaynaudsFreeWorld
#RareDisease #Hope #Belief 

Follow Raynauds Scleroderma Awareness Global Patients Facebook Page for latest updates 

Thanks to USA patient Sharon Esposito for sharing her wonderful creativity
Please use the icons below to share this article #SclerodermaAwareness


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