Thursday, 23 June 2016

DAY 23: Kidney / Renal, Scleroderma Awareness Month 2016


DAY 23: Kidney / Renal, Scleroderma Awareness Month 2016
DAY 23  Scleroderma Awareness Month: KIDNEY / RENAL Management

As discussed in DAY 3  Scleroderma Awareness Month 2016 – Scleroderma can affect all body parts. 

I also focussed on the Kidney and Renal involvement for DAY 15  Scleroderma Awareness Month 2016 post, where I focussed on the symptoms of kidney involvement and kidney crisis. 

Today’s image focusses on the risk factors and treatments used to attempt to control the symptoms when the kidney is affected in scleroderma.

Kidney involvement used to be the main contributor to death in scleroderma patients. However, due to improved understanding and treatments being made available this is now no longer the case, with lung involvement now the main contributor to life threatening complications. DAY 17   Scleroderma Awareness Month 2016.

As can been seen in the image, there is no cure as such, for kidney involvement, as the treatments target symptom suppression. If the relevant kidney bio-markers are prevalent, some patients may benefit from taking ACEi  (Angiotensin Converting Enzyme inhibitor) drugs to try and prevent further organ damage. This class of drugs have improved the outlook of the scleroderma patient with kidney involvement significantly.

In the event that a patient has experienced irreversible kidney damage, a transplant may be a final option, as by the indicated guidelines. 

To see the UK Scleroderma Study Group Guidelines click  here 

Over the last few decades, clinical trials have focussed on better understanding of the mechanisms and processes involved in the scleroderma affected kidney, thereby, improving life expectancy and quality of life for this type of patient. 

The Zibotentan Better Renal Scleroderma Outcome Study (ZEBRA) is currently recruiting scleroderma patients with kidney involvement. To learn more about this click here  


This article was originally published here  in my Column with Scleroderma News.
To read my articles:
The importance of an early diagnosis click here 
the role of medical research click here
the importance of expert specialist centres click here
diet and nutrition click here
taking part in research trials click here
the UK guidelines for management and treatment of Scleroderma click here
my skin is cured from scleroderma click here 
BSR and BHPR guideline for the prescription and monitoring of non-biologic disease-modifying anti-rheumatic drugs, Raynaud's, Scleroderma, Rare Disease click here  

EULAR guidelines for treatment of systemic sclerosis scleroderma, click here  


Please DONATE to help fund medical research at the Scleroderma Unit at The Royal Free hospital where 100% of your donation will be used to fund vital medical research. Thank You.
May 2017 Total
Living the dream, scleroderma style, hoping for a cure
#SclerodermaFreeWorld #RaynaudsFreeWorld


29th June World Scleroderma Day. Read more here
Scleroderma Awareness flashback 2016. Read more here  
Scleroderma Awareness 2016 Campaign Index Click here  
Follow Raynauds Scleroderma Awareness Global Patients Facebook Page for latest updates 
To view the Facebook page Scleroderma Awareness Month 2016 campaign images Click  here
To view Facebook page Photo Album ‘Wellbeing Side to living with Raynaud’s and Scleroderma’ Click  here 

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