Wednesday, 22 June 2016

DAY 22: ‪Journal of Scleroderma and Related Disorders (JSRD), Scleroderma Awareness Month‬ 2016

DAY 22: ‪Journal of Scleroderma and Related Disorders (JSRD), Scleroderma Awareness Month‬ 2016 

DAY 22  Scleroderma Awareness Month:

1 Week to go until World Scleroderma Day 29th June 

To celebrate the launch of the first edition of the new Journal of Scleroderma and Related Disorders and World Scleroderma Day, the editors are kindly offering to SclerodermaNews readers, the annual subscription to the Journal at a discounted price, for 1 week only.

Please email for further information. 

I made the Journal the subject of a blog post a few months ago, to read the post click here 

The contents of the Journal show that there are very exciting times ahead for the global scleroderma community, by way of differing biological mechanisms and processes involved in the scleroderma disease pathway, being better understood. This of course, is enhanced greatly by global collaboration, making the bi-annual Systemic Sclerosis World Congress a hub of pioneering scleroderma activity. 

The next World Congress is scheduled to take place in Bordeaux in 2018. Click here

All in all, there is still a long way to go in reaching the light at the end of the tunnel in making a scleroderma-free-world, but imagine that- a #sclerodermafreeworld. 

This article was originally published here  in my Column with Scleroderma News. 

To read my articles:
The importance of an early diagnosis click here 
the role of medical research click here
the importance of expert specialist centres click here
diet and nutrition click here
taking part in research trials click here
the UK guidelines for management and treatment of Scleroderma click here
my skin is cured from scleroderma click here 
BSR and BHPR guideline for the prescription and monitoring of non-biologic disease-modifying anti-rheumatic drugs, Raynaud's, Scleroderma, Rare Disease click here  
EULAR guidelines for treatment of systemic sclerosis scleroderma, click here  

Please DONATE to help fund medical research at the Scleroderma Unit at The Royal Free hospital where 100% of your donation will be used to fund vital medical research. Thank You.
May 2017 Total
Living the dream, scleroderma style, hoping for a cure
#SclerodermaFreeWorld #RaynaudsFreeWorld

29th June World Scleroderma Day. Read more here
Scleroderma Awareness flashback 2016. Read more here  
Scleroderma Awareness 2016 Campaign Index Click here  

Follow Raynauds Scleroderma Awareness Global Patients Facebook Page for latest updates 

To view the Facebook page Scleroderma Awareness Month 2016 campaign images Click  here

To view Facebook page Photo Album ‘Wellbeing Side to living with Raynaud’s and Scleroderma’ Click  here 

Please use the icons below to share this article #SclerodermaAwareness

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