Thursday, 16 June 2016

DAY 16: The Heart / Cardiac Involvement, Scleroderma Awareness Month 2016



DAY 16: The Heart / Cardiac Involvement, Scleroderma Awareness Month 2016 


DAY 16  Scleroderma Awareness Month: THE HEART 

Scleroderma can affect all body parts, including the heart. This can be seen in the limited forms and the diffuse forms – see  Day 1  Scleroderma Awareness Month Campaign 2016. 

As can be seen in the above image, scleroderma can affect the heart in many different ways. An early diagnosis and diagnostic tests can be crucial in preventing life threatening damage with irreversible heart involvement. 

Currently, there is no cure, with treatments targeting symptom suppression and blood pressure regulation, with transplantation, being a final option. 

Here in the UK, Hollie Owen recently underwent a heart transplant, aged 20, due to the damage caused to her heart by diffuse scleroderma. Hollie is making amazing progress with her new heart and has now returned home to convalesce. To follow Hollie’s story visit her facebook page ‘Hope for Hollie- Heart Transplant’ here

For more information on the UK Scleroderma Study Group cardiac management guidelines click here and here
This article was originally published here  in my Column with Scleroderma News.
To read my articles:
The importance of an early diagnosis click here 
the role of medical research click here
the importance of expert specialist centres click here
diet and nutrition click here
taking part in research trials click here
the UK guidelines for management and treatment of Scleroderma click here
my skin is cured from scleroderma click here 
BSR and BHPR guideline for the prescription and monitoring of non-biologic disease-modifying anti-rheumatic drugs, Raynaud's, Scleroderma, Rare Disease click here  

EULAR guidelines for treatment of systemic sclerosis scleroderma, click here  


Please DONATE to help fund medical research at the Scleroderma Unit at The Royal Free hospital where 100% of your donation will be used to fund vital medical research. Thank You.
 
May 2017 Total
Living the dream, scleroderma style, hoping for a cure
#SclerodermaFreeWorld #RaynaudsFreeWorld


29th June World Scleroderma Day. Read more here
Scleroderma Awareness flashback 2016. Read more here  
Scleroderma Awareness 2016 Campaign Index Click here  
Follow Raynauds Scleroderma Awareness Global Patients Facebook Page for latest updates 

To view the Facebook page Scleroderma Awareness Month 2016 campaign images Click  here

To view Facebook page Photo Album ‘Wellbeing Side to living with Raynaud’s and Scleroderma’ Click  here 

Please use the icons below to share this article #SclerodermaAwareness



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