Wednesday, 1 June 2016

DAY 1: Types of Scleroderma, Scleroderma Awareness Month 2016 H 2016



Each day, for my Column at Scleroderma News, for the duration of Scleroderma Awareness month, I will be posting daily information and facts about Scleroderma, which I hope will be of interest. An empowered, educated patient makes for a better “scleroderma journey,” as prevention is better than cure, and there is no cure, currently.

Today’s post is a ‘basic’ explanation as to the different types of Scleroderma and their involvement with the body. As pointed out on the diagram, there are no two patients who display the exact same symptoms, making diagnosis and treatment research more complicated. In addition, the multitude of overlapping symptoms seen with other autoimmune conditions, add to the mix. This can, however, be viewed as a positive, since by uniting together, research findings can be joined up, contrasted, and compared.

One of the main obstacles to a Scleroderma patient, and every rare disease patient, is a timely diagnosis. Life threatening damage is prevented by an early diagnosis because not everyone will respond to current available treatments, as the disease may have progressed too far, making later-diagnosed patients non-responsive to treatment. 

This article was published here in my 'Living the Dream, Scleroderma Style' Column  with Scleroderma News.


To read my articles:

The importance of an early diagnosis click here 
the role of medical research click here
the importance of expert specialist centres click here
diet and nutrition click here
taking part in research trials click here
the UK guidelines for management and treatment of Scleroderma click here
my skin is cured from scleroderma click here 
BSR and BHPR guideline for the prescription and monitoring of non-biologic disease-modifying anti-rheumatic drugs, Raynaud's, Scleroderma, Rare Disease click here  
EULAR guidelines for treatment of systemic sclerosis scleroderma, click here  

Please DONATE to help fund medical research at the Scleroderma Unit at The Royal Free hospital where 100% of your donation will be used to fund vital medical research. Thank You. 

Living the dream, scleroderma style, hoping for a cure
#SclerodermaFreeWorld #RaynaudsFreeWorld
 
29th June World Scleroderma Day. Read more here
Scleroderma Awareness flashback 2016. Read more here 

Scleroderma Awareness 2016 Campaign Index. Click here

Follow Raynauds Scleroderma Awareness Global Patients Facebook Page for latest updates https://www.facebook.com/RaynaudsSclerodermaGlobal/
To view the Facebook page Scleroderma Awareness Month 2016 campaign images Click 
To view Facebook page Photo Album ‘Wellbeing Side to living with Raynaud’s and Scleroderma’ Click  here  


Please use the icons below to share this article #SclerodermaAwareness
 

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